Extraordinary Gene Team raise over £30K in the London Marathon!

On Sunday, 12 amazing fundraisers ran the London Marathon for Jeans for Genes and Genetic Disorders UK, raising a truly epic £30,000 and counting!

Marissa Bird, Ben Young, Hayley Woods, Paul Lyons, Jo May, Henry Hill, Andy Judd, Daniel Kitchen, Timothy and Graham Fletcher, Rachel Degg and Melissa Venables have all been training for months in preparation for the big day and on Sunday all 12 completed the race to smash their fundraising target and raise funds to provide vital support and care for children with genetic disorders across the UK.

Marissa Cheer Point Marissa ShadwellMarissa Bird ran for her son who has Chromosome 1q21.1 Duplication Syndrome and completed the marathon despite breaking her ankle just 10 months before. https://www.justgiving.com/Marissa-Bird/

Ben Cheer Point Ben Medal 3Ben Young ran in support of his friend’s son Louis who has a chromosome 18 abnormality. http://uk.virginmoneygiving.com/team/BenandLiz

Hayley & DaughterHayley Woods ran for her sister who has Sjorgens Syndrome, and Hayley herself has Cyclical Neutropenia which causes recurrent low neutrophils (the white blood cells which fight bacterial infections). http://uk.virginmoneygiving.com/HayleyWoodsGeneTeam

Paul Medal 2Paul Lyons ran for his 7 year old daughter who has Deletion of the Short Arm of Chromosome 5. http://uk.virginmoneygiving.com/PaulLyons15

Jo Medal 3Jo May completed the marathon for her mother who is suffering from Huntington’s Disease. http://uk.virginmoneygiving.com/JoMay1

Andy & SuzieHenry MedalAndy Judd and his best friend Henry Hill completed the marathon for Andy’s daughter Ava who has MDP Syndrome. Andy’s wife Suzie completed the Great North Run 2014 for Genetic Disorders UK raising over £9,000. http://uk.virginmoneygiving.com/HenryHill1 http://uk.virginmoneygiving.com/AndyJuddLondonMarathon

Daniel & SonDaniel Kitchen ran for his son Finn who has Joubert Syndrome which affects just 1 in every 200,000 people. http://uk.virginmoneygiving.com/DanielKitchen

Graham & Timothy Medals Graham Massage 4Timothy Fletcher ran with his dad Graham and friend Rachel Degg for his niece and nephew who are both affected by a genetic disorder. https://mydonate.bt.com/fundraisers/timgrahamrachel

Melissa MedalMelissa Venables completed the gruelling Marathon des Sables only 2 weeks ago and has now also added the marathon to her list of achievements. Melissa works with children affected by genetic disorders. http://uk.virginmoneygiving.com/MelissaVenables

A huge congratulations and massive thank you to all our inspirational runners who completed the London Marathon 2015 raising an outstanding £30K to fund the support and care of children affected by genetic disorders across the UK. You are all superheroes!

Feeling inspired? Email events@geneticdisordersuk.org to find out how you too can support Jeans for Genes and Genetic Disorders UK.

Don’t forget to sign up for Jeans for Genes Day 2015 on Friday 18th September www.jeansforgenes.org/signup

How to have an eggcellent Easter!

Need some activity inspiration this Easter weekend? We’ve got you covered with a range of egg-cellent ideas to keep you and your family busy from morning ‘til night.

Decorate your eggs in Denim!

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We love this denim Easter egg tutorial from Ashbee Design, all you need is some small denim patches, some glue and a couple of eggs and you’ll have created these fab eggs in no time!

Why not take your denim decoration a step further and give your eggs their own Jeans for Genes Day look:

  1. Place your eggs in some eggs cups
  2. Draw faces on your eggs – you can add googly eyes, hair or hats, be creative!
  3. Wrap some old denim around your egg cup and glue in place to create a pair of jeans or denim skirt – you’re eggs are all set for Jeans for Genes Day!

easter-crafts-for-kids-egg-couple

For a super simple decoration idea, try dying your eggs blue!

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  1. Add some blue food colouring to a glass of water
  2. Dip your eggs in the water and set aside to dry
  3. Using some brown paint and a toothbrush, lightly dab all over the eggs to create a speckled effect, allow to dry and voila!

Easter Home Decoration

Now you’ve decorated your eggs, why not have a go at decorating your home too. We love Not On The High Street’s range of gorgeous Easter products!

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And these Easter Egg Hunt signs from Marks and Spencer are perfect for pointing you in the right direction to claim your eggs!

m and s signsNow all the decorating is done, sit back with a cuppa and enjoy a chocolate treat! Here are some of our favourite blue Easter eggs:

Jamie's egg

Jamie’s Easter Egg available at John Lewis

Sainsburys eggs

Sainsburys Taste The Difference Swiss Chocolate Eggs

blue mini easter eggs amazon

Blue Mini Easter Eggs available from Amazon

While you’re relaxing don’t forget to sign up for Jeans for Genes Day 2015 on Friday 18th September!

Guest Blog: A Special Mother’s Day Message from mum and Jeans for Genes Supporter Sara Jackson

Sara JacksonI recently attended a Leadership Symposium run by the charities Genetic Disorders UK and Global Genes.  Alongside me were many men and women who spend their time fighting for the rights of those affected by rare genetic disorders; be they parents, scientists, doctors or advocates, all of them working to make the lives of children with rare diseases better.

I came away with a head full of inspiration and information, but what is left now as I write this blog, is a heart full of the pain and hope of the mothers I met.

Many of these amazing women have chosen to face outwards to the world, in order to find ways to change and improve on what they had to fight to achieve.

I felt so proud to be part of this group, trying as I do to raise awareness and stand up tall.  Alongside my TV day job and mothering of my boys, one of whom has two rare disorders, I have chosen to help run the charity Chromosome 18 Europe and write children’s books, one of which is now a musical ebook called The Treehouse at Number 9, created to raise awareness for GDUK and all the rare gems out there.

Treehouse Genies Gang

The Treehouse Genies featured in The Treehouse at Number 9

So instead of being asked how I find the time, as is often the case, this weekend I was in the happy position of wondering and asking other women how they managed.  Managed to change the law, run a foundation, form a charity, build a network, create a science programme, put on a conference and strengthen a global movement.

I basked in the glory of this room full of champions, and realised that while there were 100 different conditions represented, what we have in common as parents, and mothers is bigger than all of that.  I believe strongly that it is our commonalities that will help us to go from a group of individuals, to a movement of many.

As parents of special kids we exist to navigate the world for our children and fight to keep them healthy. We don our armour to smooth the path and battle with the systems in order to give them the best future we can.  We often choose to do this by forming charities and finding others, pushing to make things easier for those that follow, often knowing that the benefit won’t be felt by us at all.

These are the things that we do, outside of the day to day, shape our lives as special parents, with no palpable reward.  However just knowing we might have helped even one person to have it a little bit easier is kind of priceless.

Sara Jackson's boys in Toronto

So Happy Mother’s Day to all the mums out there, special or otherwise, and all the dads and grandparents, siblings and friends who help us to do what we do.

Sara Jackson

Find out more on Chromosome 18 Europe here: www.chromosome18eur.org and check out Sara’s blog here: http://sarajinbetween.blogspot.co.uk/

Why not sign up for Jeans for Genes Day 2015 on Friday 18th September and help to transform the lives of children with genetic disorders.

London’s City Jeanius Crowned!

Our Jeanius Quiz went down a storm on Monday night in London as teams from offices across the capital battled it out to be crowned London’s City Jeanius 2015.

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The Quiz took place in two of Drake and Morgan’s lovely bars, The Fable in Farringdon and The Anthologist near Bank, with entrants being offered a complimentary drink and nibbles, as well as the opportunity to buy a fabulous Blue Jean Cocktail with £1 being donated to Jeans for Genes for every Cocktail sold.

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The night also played host to a fabulous raffle with prizes donated from top brands like Elemis, Lancôme, Ted Baker and Bombay Sapphire.

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Over 8 rounds the teams battled it out, testing their knowledge on everything from chocolate to city skylines, and genetics to geography, until the winning teams were crowned.

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At The Anthologist, Credit Suisse pipped the rest at the post to take first place, whilst at The Fable, Sons of Pioneers stormed to an astonishing victory. First prize included dinner and drinks for 5 at The Happenstance & a bottle of Glenmorangie Whiskey, and a £200 voucher for The Phene & a magnum of Nicolas Feuillatte champagne.

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Thank you to everyone who came down, took part in the quiz and tried their luck at the raffle, we hope you had an amazing night whilst raising money for Jeans for Genes!

For more photos check out our Facebook: 

jeansforgenes.org/donate

Pancake Day, Jeans for Genes Style!

Today is Pancake Day, which can only mean one thing! It’s time to get your bake on and cook up a batch of blue-berry pancakes!

blueberry pancakes

What you’ll need:

  • 200g self-raising flour
  • 1tsp baking powder
  • Pinch of salt
  • 1 egg
  • 300ml milk
  • Knob of butter
  • Packet of blueberries
  • A little oil or butter for cooking
  • Golden or maple syrup

How to make:

  1. In a large bowl, mix together the flour, baking powder and a pinch of salt
  2. In a separate bowl, beat together the egg and milk
  3. Make a well in the centre of the dry ingredients and whisk in the mixture of milk & egg to make a smooth, thick batter
  4. Melt the knob of butter and mix in to the batter
  5. Stir in half the packet of blueberries to the batter
  6. Heat the oil or butter in a large non-stick frying pan
  7. Drop a large tablespoonful of the batter into the pan to make a pancake about 7cm across – you can make 3 or 4 pancakes at once
  8. Cook on a medium heat for about 3 minutes until bubbles appear on the surface of each pancake, then turn and cook for another 2-3 minutes until golden
  9. Serve with golden or maple syrup and the rest of the blueberries

For loads more blueberry pancake recipes check out our Pinterest: http://bit.ly/1zxZCXo

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Recipe found here: http://bit.ly/1dmut2X

Denim Date Night

Got a date this Valentine’s Day but no idea what to wear? Don’t panic as we have some delightful denim date night ideas just in time for the weekend!

Denim has been all over the catwalks this year, and is set to be a key trend this SS15. It’s been featured heavily in the likes of Vogue and ELLE, not to mention the amazing denim collection launched by Alexa Chung for AG Jeans. Here’s our pick of some of the season’s hottest denim for your denim date night:

Alexa Chung for AG Jeans Denim Dress

Alexa Chung Dress
http://bit.ly/1AeNXCa

H&M Denim Shirt

H&M Denim Shirt

http://bit.ly/1uz0csy

Topshop Denim Dress

Topshop Denim Dress

http://bit.ly/1CcCdwP

Monki Denim Culottes

Monki Denim Culottes

http://bit.ly/1y54Zx3

Topshop Denim Coat

Topshop Denim Coat

http://bit.ly/1A8okVb

Cheap Monday Denim Bag

Cheap Monday Denim Bag

http://bit.ly/1Ft4Adv

Check out our Pinterest for even more denim fashion inspiration http://bit.ly/1zFPcdd

Now you’re outfit is sorted, why not do something different for Valentine’s Day and test your sweetheart’s general knowledge at our Jeanius Quiz! Grab your tickets for Monday 16th February at a choice of three bars in Central London: bit.ly/1FSKk5L